TABLE 1.

Participant Demographic Characteristics (Surveys, Interviews and Focus groups)

VariableSurvey
N = 51
Interiews/Focus Groups
N = 14
Age
    Mean (SD)30.7 (10.6)32.5 (5.7)
    Median2832
    Minimum-Maximum16-6625-43
    Missing, n61
Ethnicity/Race, n (%)
    Non-Hispanic/Black45 (88.0)13 (93.0)
    Hispanic/Black3 (6.0)1 (7.0)
    Don’t know/Black1 (2.0)
    Missing, n2 (4.0)
Gender, n (%)
    Male26 (52.0)5 (36.0 )
    Female24 (48.0)9 (64.0)
    Missing, n1 (2.0)
Insurance, n (%)
    Private insurance only9 (18.4)2 (14.3)
    Medicare only4(8.2)2 (14.3)
    Medicaid only15 (30.6)4 (28.6)
    Private Insurance + Medicaid2 (4.1)0
    Private Insurance + Medicare1 (2.0)1 (7.1)
    Medicare+ Medicaid14 (28.6)3 (21.4)
    Other government program1 (2.0)0
    State sponsored insurance1 (2.0)0
    Medicare + Other government program1 (2.0)0
    Don’t know1 (2.0)0
    Missing, n2 (4.0)2 (14.3)
Genotype, n (%)
    SS38 (76.0)
    SC8 (16.0)
    S Beta 0 Thalassemia1 (2.0)
    SB+2 (4.0)
    SS Alpha Thalassemia1 (2.0)
    Missing, n1
  • Note. Missing = participants who provided no response to the survey item.