TABLE 4.

Recommendations for Improved Care

CategoryRecommendations
Provider knowledge and empathy1. Improvement in sickle cell disease knowledge and management of painful crisis.
2. Implementation of guidelines that ensure standardized care in the hospital.
3. Empathy and compassion from providers.
4. Stigma mitigating strategies that will ensure less bias.
Care coordination and follow-up1. Improvement in communication among clinicians or specialists.
2. Establishment of follow up appointments with relevant specialists.
3. Facilitated provision of prescriptions, particularly for opioids.
Individualized pain protocol1. Easy access to electronic medical records by the patient and provider.
2. Individualized pain protocols listing drug types and dosages that alleviate pain.
Complementary resources1. Non-medical personnel such as case-managers and social workers, who will facilitate adherence to clinic appointments.
2. Psychosocial support by chaplains and patient champions or advocates with a similar disease burden.
Transport and treatment costs1. Reduction in treatment costs for uninsured patients.
2. Provision of transport to medical appointments.
Address misconceptions about hydroxyurea1. Classes in the sickle cell clinic.
2. Online tutorials.
3. Success stories on the effectiveness of hydroxyurea.